Care Work

dreaming disability justice

263 pages

English language

Published July 10, 2018

ISBN:
978-1-55152-738-3
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OCLC Number:
1022794053

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"In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and longtime disability justice activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Leah writes passionately and personally about creating spaces by and for sick and disabled queer people of colour, and creative "collective access" -- access not as a chore but as a collective responsibility and pleasure -- in our communities and political movements. Bringing their survival skills and knowledge from years of cultural and activist work, Piepzna-Samarasinha explores everything from the economics of queer femme emotional labour, to suicide in queer and trans communities, to the nitty-gritty of touring as a sick and disabled queer artist of colour"--

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i thought this was just okay. i finished their more recent work, the future is disabled, early last year, and had this one lingering in the back of my mind to read through. maybe because the other one is more recent and they have a more mature outlook on life, but i didn't find this as revolutionary. i will say, it is still making me sit with some feelings (ie crip doulaing, especially since i'm very fearful of becoming disabled as someone who forsees being single without biological family really in the picture for the long term if not for the rest of my life) so maybe that's the purpose and it's not supposed to be some big wow moment.

I made it, but it wasn't easy

I sure had a lot of feelings while reading this book. Mostly in a good way. In a "someone actually KNOWS" way. It also showed me possibilities and found words for experiences I never shared with anyone. Quite intense.

I still had a hard time reading it. It's a very lose collection of different essays or other pieces of writing the author accumulated over the years. Some are more accessible and polished than others. In this the format is part of telling the story of how you write a book as a disabled person with never enough spoons. In many ways it reads like a (very personal and local) disability organizing history focusing on North America. We need more of that, from more perspectives, it's something Leah talks about in the book too.

It is a book by and for disabled people, especially disabled POC, before anything else. …

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Subjects

  • People with disabilities
  • Social justice
  • Legal status, laws
  • Discrimination against people with disabilities

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