#ethics

See tagged statuses in the local BookWyrm community

replied to Pepijn's status

update: Thanks for sharing and commenting. I got some good POV via DM & publicly!

While I asked for one thing (the necessity of patient databases in rare disease research / clinical trials) many commenters focussed on the data security aspect: I was taken aback that without prompting most medical researchers mentioned they would not register their own information in a US-run database as the one I asked about. Something really broke there.

With Pliant, an Emboldened Pushes His Business Interests

Norms recognized for decades in DC by both parties no longer appear to apply to Trump, fmr prosecutors & lawyers say.

The Oval Office meeting convened by Trump brought together the most important leaders in the world of pro : Jay Monahan, the top exec at the Tour, &, via telephone, Yasir Al-Rumayyan, the chairman of the -backed league known as .


https://www.nytimes.com/2025/02/17/us/politics/trump-ethics-conflicts-business-adams.html?smid=nytcore-ios-share&referringSource=articleShare

→ Please Stop Inviting AI Notetakers to
https://www.bloomberg.com/news/articles/2025-02-14/ai-notetakers-in-meetings-are-making-me-queasy

“A critical thing that notetaking lacks […] are the non-verbal cues from the speakers," [Margaret Mitchell, chief scientist at Hugging Face] says.

“The tech-booster answer to that problem might be to get AI notetakers to incorporate visual processing as well. "But then we’re at the issue," she says — and your harried Monday morning visage becomes another data point to count you.”

replied to Pepijn's status

My question is to medical researchers: how much do you need databases of this type* to find subjects, data etc.
Is it key (as the US foundation claims), is it just practical to easily find subjects, or is it perfectly ok to find data and subjects in a more organic manner?

Thanks :-)

*register containing name, dob, formal diagnosis, symptoms, limited medical history including. medicine / operations
3/3

Christian couple adopts a Chinese child knowing she would one day need a heart transplant. They refuse to vaccinate her against COVID-19 or flu because "the vaccines conflict with their religious and medical beliefs" so she can't be put on the transplant list.

https://www.cincinnati.com/story/news/politics/2025/02/13/what-did-childrens-hospital-say-about-the-controversy-over-vaccines/78511635007/

A dangerous, damaging civil war at the Department

-

“What’s going on is nothing short of a civil war inside the Justice Department, a battle over whether its lawyers are going to serve as the obedient shock troops for President Donald or as custodians of the rule of , with simultaneous duties to defer to policy determinations of the incumbent administration & to respect professional standards.”


https://wapo.st/4hZcbbW

President Donald Trump is doubling down on his attempt to boot the Biden administration’s whistleblower advocate, Hampton Dellinger, from his post at the Office of Special Counsel, filing motions for an “immediate administrative stay” of a stay — in both the district and appeals court — that was granted on Monday night that allowed Dellinger keep his job while the courts weigh whether his firing was legal.

https://lawandcrime.com/high-profile/intrudes-on-the-presidents-lawful-authority-trump-doj-fires-back-at-judge-who-let-biden-ethics-enforcer-keep-job-with-motions-to-stay-her-order/

Left: President Donald Trump gives remarks during an event celebrating the 2024 Stanley Cup Champion the Florida Panthers in the East Room of the White House in Washington, DC on Monday, February 3, 2025 (Photo by Aaron Schwartz/Sipa USA)(Sipa via AP Images). Center: WASHINGTON, DC – APRIL 13: U.S. District Judge Amy Berman Jackson listens during the investiture ceremony for U.S. District Judge Trevor N. McFadden April 13, 2018 at the U.S. District Court in Washington, DC. (Photo by Alex Wong/Getty Images). Right: Hampton Dellinger (Office of Special Counsel).